Chiari Malformation

Part of my journey in life – and what makes me, well, ME is something I was diagnosed with in May of 2011.
 
Having never heard of Chiari Malformation prior to that warm May day, it would forever change everything in my life. It answered some questions and brough about tons of new ones.
 
 In layman’s terms, my brain does not fit into my skull properly. There isn’t enough room. It’s not that I am smarter than most people and have this massive brain – but rather that my skull is a bit too small. What happens when your brain is too big for the container provided to keep it in?  Bad stuff, that’s what.
 
It then herniates (or squishes down into) the brain stem where all the nerves run from your brain into your spine so that you can do lots of messaging work to the rest of your body.  Squishing brain matter into a space specifically designated to do some demanding networking  work and things get mucked up.  
 
Chair Malformation can cause many different problems for many different people;  no two Chiari patients are the same. Why? Because we are talking about squishing a brain and it’s networking system of nerves and signal translators. No two brains squish the same two nerves the same way. It makes it hard for anyone to really understand, and why it goes undiagnosed for so long for most of us.  
 
(More info read over @ http://en.wikipedia.org/wiki/Arnold–Chiari_malformation )
 
I lovingly refer to Chiari  as “squished brain syndrome” even though there is no one else out there calling it that. It’s the truth and the reality is hard.
 
 You will find a list of past blogs in which Chiari was mentioned as a full blog, or touched on in the course of daily life. Look under categories or under a health tab. I hope they help. Feel free to message me if you like, I am always happy to answer anything I can in any way. I am no doctor, nor expert, but I do know the personal challenges and hell of living with it.

Please feel free to browse, read, pass on links to, and comment about anything.  

 
Chiari Blogs:
https://christisuecampbell.com/category/chiari-malformation/
 Happy reading – and thanks for stopping by!
 
 
 
For more info and support, head over to: https://www.facebook.com/groups/FacesofChiari/permalink/10151568879828745/

8 thoughts on “Chiari Malformation

  1. Jenna says:

    Hi, I also have Chiari and was researching about a device called Quell & saw that you purchased one. I would love to know how it worked out. I am scheduled for decompression surgery in January. I have been suffering from muscle spasms in my neck and throat area for over 2 months now and am pretty desperate for relief. It seems like a lot of money, but if it works it would be well worth it. TIA for anything you can tell me good or bad about the Quell devise.

    Liked by 1 person

    • ChristiSue Campbell says:

      I don’t have any throat spasms but it does seem to assist me with neck and muscle pain across the shoulders and down my spine. I’ve found it to be a good resource and there are no side effects like the narcotics. When looking at cost, frankly I’ve spent far more on hoping various meds and tricks could work. I’m not saying it’s a drop in the bucket. Money is stupidly tight. But after the initial device cost it’s the same price per month as one of my many copays for scripts to keep me functioning. This is drug free and seems to make sense.

      Like

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