Part of my journey in life – and what makes me, well, ME is something I was diagnosed with in May of 2011.
Having never heard of Chiari Malformation prior to that warm May day, it would forever change everything in my life. It answered some questions and brough about tons of new ones.
In layman’s terms, my brain does not fit into my skull properly. There isn’t enough room. It’s not that I am smarter than most people and have this massive brain – but rather that my skull is a bit too small. What happens when your brain is too big for the container provided to keep it in? Bad stuff, that’s what.
It then herniates (or squishes down into) the brain stem where all the nerves run from your brain into your spine so that you can do lots of messaging work to the rest of your body. Squishing brain matter into a space specifically designated to do some demanding networking work and things get mucked up.
Chair Malformation can cause many different problems for many different people; no two Chiari patients are the same. Why? Because we are talking about squishing a brain and it’s networking system of nerves and signal translators. No two brains squish the same two nerves the same way. It makes it hard for anyone to really understand, and why it goes undiagnosed for so long for most of us.
(More info read over @ http://en.wikipedia.org/wiki/Arnold–Chiari_malformation )
I lovingly refer to Chiari as “squished brain syndrome” even though there is no one else out there calling it that. It’s the truth and the reality is hard.
You will find a list of past blogs in which Chiari was mentioned as a full blog, or touched on in the course of daily life. Look under categories or under a health tab. I hope they help. Feel free to message me if you like, I am always happy to answer anything I can in any way. I am no doctor, nor expert, but I do know the personal challenges and hell of living with it.
Please feel free to browse, read, pass on links to, and comment about anything.
Happy reading – and thanks for stopping by!
For more info and support, head over to: https://www.facebook.com/groups/FacesofChiari/permalink/10151568879828745/